USAID Eliminating Tuberculosis in Central Asia Activity: Unbroken by TB and Stigma

Supporting people with TB to help them adhere to treatment is the part of Umarali’s daily life.

Supporting people with TB to help them adhere to treatment is the part of Umarali’s daily life.

Fifty-year old Umarali Nabiyev knows both the physical pain and emotional trauma of tuberculosis (TB). The stigma associated with having TB in Tajikistan can lead to harmful treatment outcomes. Due to a limited understanding of TB treatment, friends and family can often shame TB patients during this difficult time. That can contribute to delays in seeking treatment and treatment non-compliance.

Umarali was ostracized for his illness. “When I got sick with TB for the second time, I felt that everyone was pointing a finger at me,” he recalls. “My friends avoided meeting me. When I arrived somewhere, people just got up and left. It seemed to me that I would never be able to rejoin life in society.”

While undergoing treatment in early 2020, Umarali took part in a life-changing informational session conducted by the USAID Eliminating TB in Central Asia activity led by Abt Global and local TB specialist in Norak. At the session, Umarali says, “for the first time, I felt a positive attitude toward myself. The supportive speeches and friendly approach of the outreach workers gave me and other people with TB hope for a cure. It was as if I gained strength. I changed my views and plans for the future.”

After the informational session, Umarali became an advocate for those with TB. He started to speak up against the disrespect people had shown him. He even took the unusual step of lodging a complaint —successfully— against a staff member at a regional TB hospital for his disrespectful treatment of patients. In the end, the healthcare worker’s conduct was determined to be unacceptable. The hospital’s management addressed this and provided a stern reminder to all the staff at the facility about the importance of treating patients with respect.